I was diagnosed with MDS nearly 4 years ago and have recently completed my 34th cycle with Vidaza. Everything is going well apart from a reduced haemoglobin level, which is leaving me tired. I am still above the level which would justify regular blood transfusions, and although most of my fellow patients at my clinic are having these regularly I have never had one. My consultant is considering complementing my treatment with the use of EPO injections. I gather from contacts in the USA that this is normal practice there. Does anybody have any experience of being treated with EPO ?
David Miller
- Board index
-
- It is currently 19 Apr 2024 03:49
- All times are UTC+01:00
Treatment with EPO
Moderator: Steering Committee
Return to “MDS Treatment: Supportive care medication (EPO, GCSF, antibiotics)”
Jump to
- About the Forum - PLEASE READ THIS FIRST
- Messages and Links From the Support Team
- Introductions and General Chat
- ↳ Say hello
- ↳ Our Stories
- ↳ General Chat
- Events and Fundraisers
- Regional Meeting Groups
- ↳ Bournemouth Group
- ↳ Essex Group
- ↳ Ireland and Northern Ireland Group
- ↳ Kent Group
- ↳ London Group
- ↳ MDS UK Annual General Meetings
- ↳ MDS Zoom Café Online
- ↳ Midlands Group
- ↳ Oxford Group
- ↳ Scotland Group
- ↳ Southampton Group
- ↳ Local Group coordinators
- Childhood MDS
- CMML
- COVID-19 topics
- The Diagnosis Process (incl Biopsies; IPSS/Risk groups; Progression of MDS; Mutations)
- ↳ Bone Marrow Biopsies
- ↳ IPSS Risk Groups / IPSS-R v IPSS-M
- ↳ Mutations
- ↳ Progression of MDS
- Family, Friends and Carers
- Fatigue and MDS
- MDS and Autoimmune Conditions
- MDS Types
- ↳ MDS Type: General
- ↳ MDS Type: Watch and Wait
- ↳ MDS Type: 5q-
- ↳ MDS Type: SLD / MLD
- ↳ MDS Type: With Excess Blasts
- ↳ MDS Type: With Sideroblasts / RARS / SF3B1 mutation
- ↳ MDS Type: Unclassified and other variants
- ↳ MDS Type: ICUS, CCUS, CHIP
- ↳ MDS Type: Familial MDS
- MDS Treatments
- ↳ MDS Treatment: Azacitidine/Vidaza
- ↳ MDS Treatment: Blood Transfusions
- ↳ MDS Treatment: Iron Overload & Chelation
- ↳ MDS Treatment: Lenalidomide/Revlimid
- ↳ MDS Treatment: Luspatercept/Reblozyl
- ↳ MDS Treatment: Supportive care medication (EPO, GCSF, antibiotics)
- ↳ MDS Treatment: All Other Treatments
- ↳ MDS/AML Treatment: Azacitidine and Venetoclax
- Nutrition and General Health Supplements
- Research and Clinical Trials
- ↳ Clinical Trials
- ↳ Research
- Stem Cell Transplants
- ↳ Stem Cell Transplants: General
- ↳ Stem Cell Transplants: GVHD (Graft v Host Disease)
- ↳ Stem Cell Transplant : Decisions
- Travel or Health/Life insurance for MDS
- Problems using the forum
- Contact requests - members only
- Bereavement
Who is online
Users browsing this forum: No registered users and 5 guests