I was diagnosed with MDS nearly 4 years ago and have recently completed my 34th cycle with Vidaza. Everything is going well apart from a reduced haemoglobin level, which is leaving me tired. I am still above the level which would justify regular blood transfusions, and although most of my fellow patients at my clinic are having these regularly I have never had one. My consultant is considering complementing my treatment with the use of EPO injections. I gather from contacts in the USA that this is normal practice there. Does anybody have any experience of being treated with EPO ?
Please post here your experiences of MDS as a patient, carer, family or friend
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