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MDS UK Oxford Local Group currently meeting, sharing experiences and getting answers to their questions from our specialist nurse, Kirsty. Also awaiting the arrival of specialist consultant, Prof Vyas ... See MoreSee Less

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We missed re-posting this lovely photo of CU Fitter team! With Christina Fowler 🙂 ... See MoreSee Less

Worthing Hospital Cancer Aware day, very successful day for all the many stands promoting Well
Being during the Consultants presentations, we at CUFITTER met some amazing people looking to move forward and improve quality of life.

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NHS England announced that 2nd allogeneic stem cell transplants will be funded again - as a routine procedure. Read the details: mdspatientsupport.org.uk/second-stem-cell-transplants
A very welcome - but bitter sweet victory - which cost 2 lives, a devastated family - and a third patient forced to crowd-fund her own transplant, causing massive emotional and financial issues.
This was immoral and wrong at every level and should never happen again.
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Bone Marrow Donation: All it takes to join the register is a bit of spit or a swab

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Support for the Group

The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

The MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national MDS support groups. The MDS Alliance is dedicated to sharing and improving MDS information and awareness between patients, globally.MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

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