Support, Information, Awareness & Campaigns for those affected by MDS

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Facebook Posts

In our report from the International Valencia Symposium - we presented a project on azacitidine delivery at home - in Spain.
Better QOL (Quality of Life) and cheaper for hospitals.
Read the report and watch the video - then write to your MP - and ask why this is not implemented everywhere - to save costs for NHS?
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Thank you so much for the recent reviews on Facebook - really helpful.
Feel free to add specific comments - what did you find particularly helpful in your personal situation?
Keep it coming 🙂
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Facebook members - we have an important favour to ask you: could you please rate us using the Facebook rating system? And leave a comment?
We need your honest feedback please - as it will help future patients to find and trust we do good work.
Many thanks 👍
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Bone Marrow Donation: All it takes to join the register is a bit of spit or a swab


Everything you need to know about MDS in our Patient Handbook


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Learn more about MDS with Our MDS Patient Handbook

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Support for the Group

The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

The MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national MDS support groups. The MDS Alliance is dedicated to sharing and improving MDS information and awareness between patients, globally.MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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